Ada has an appointment with her pediatric allergist at Duke tomorrow. We’ve exchanged some emails about our food introuctions with Ada. Basically, at this point, since we feel that she is a super-sensitive celiac, and her body reacts to tiny traces of gluten which can make it seem she is reacting to other foods, we are introducing a food each week or so since we saw this doctor a few months ago.
In the emails, I mentioned that her skin bumps returned after one food exposure but I couldn’t be sure which food caused it, and it was between eggs and cashews, cashews being more likely to have had a trace of wheat on them from a facility.
I told him that I have heard from many other moms in the group I am a part of, Foodlab, that her skin bumps, which he calls keratosis pilaris happen with food exposures too.
He essentially told me to remember to focus on significant “clinical” symptoms and not to read too much on the internet.
I’m a little annoyed but I can address all the fallacies of his statements.
First of all, I know to be a discerning individual when it comes to reading information on the internet, especially, about health issues. There is so much misinformation about food issues, health issues, everything.
But being a part of a group of people sharing their experiances is not the same thing. It’s more like being a part of a support group that just doesn’t meet physically.
I want to ask him if he knows how the International Board of Lactation Consultants was formed. It grew out of La Leche League, which formed in the 1960’s when 6 women noticed a lack of information and support for breastfeeding women. They got together, shared experiances, shared information, and slowly created a worldwide organization that has helped and empowered more women and aided more babies to have healthier bodies and bonds than any medical community could ever claim to.
I wish he and other doctors, specifically allergists and gastroenterologists, could step outside the box of their “clinical” symptoms.
Sharing experiancial or anecdotal evidence is powerful. It’s part of what helped me help Ada at such a young, young age. Most kids would have been miserable for much longer and until they were eating gluten themselves before the celiac issue was figured out.
I am proud that I am able to listen to the subtle, not clinically recognized signs that Ada needs. And listen to other moms and decide what information is worth noting and what isn’t. And listen to the doctor and decide what information is worth noting and what isn’t.
I googled keratosis pilaris. I found that it comes and goes, often runs in families, often runs with excema, and there is no known cause. Gee. Doesn’t that sound like something caused by a food intolerance? If you aren’t sure, the answer is yes. Interesting that an allergist would have seen so much keratosis pilaris when he primarily sees kids that have food allergies and intolerances.
And my two cents on why food issues cause skin issues?
Our skin is one of our major organs of elimination. We overlook that. Our skin gets rid of toxins. Ada’s body see gluten as a toxin.