After four collective years of experience nursing kiddos, we are dealing with something I’ve never dealt with before. It’s a pretty common problem, actually, just not one I really had to take care of:
I had too much milk, a baby who didn’t latch well, flat nipples, and eliminating foods for a nursling, but never the common little ole yeast overgrowth.
Today I was really quite upset about it. I kept telling myself, as I drove home from the pharmacy with beautifully deep purple “Gentian Violet” to coat Ada’s little white, patchy mouth with, that it is only thrush and to stop being so upset about it.
I’m not trying to minimize it, I’ve talked to many a mom dealing with terrible thrush outbreaks, fighting it for weeks and occasionally months. Actually, I’d had a call from a new mother just today who was dealing with thrush, thankfully only for a week or two.
Anyway, I’m feeling better now but I know it upset me so much simply because we are dealing with so many things with this poor kid. Her gut issues, het diet, her extensive dental work. We are going to go through with putting her under general anesthesia , a hard choice to make when I think of my little angel and an IV in her arm. But she only goes to the bathroom every 3 to 5 days, still throws up about once every 2 or 3 weeks… since the dentist is willing to work with the pediatric gastroenterologist and we will have her teeth taken care of and filed down to hopefully make the enamel last longer and the GI doctor will do an endoscopy, checking out the linings of her esophagus, stomach and part of the large intestine.
We won’t be adding gluten to her diet, most likely, before the scope, because we already know from symptoms that gluten is a problem for her and there is no reason in my mind to make her suffer anymore than she has. The reason you would is that you can eat gluten for 3 to 6 weeks before the scope to damage the intestines enough to prove that gluten hurts her enough to cause celiac disease. But we want to know why her tummy still doesn’t work as well as it should even though she is very, very gluten free.
I honestly think that adding chicken and eggs to her diet has made her chronic constipation much much worse. This week I sprouted pinto beans, soaked sunflower seeds and tried to get her to eat most of her veggies raw. I’ve decided I need to add more foods that are higher in fiber and nutrients that will help her gut have beneficial bacteria instead of focusing on adding more meat/animal foods. She eats grassfed lamb and beef and nurses– she doesn’t need more additions for protien. She obviously needs more of something else– vegetables, raw foods, probiotics, something.
Anyway. The thrush isn’t the end of the world. Ada has a purple mouth and the discomfort will hopefully subside. When people tell you Gentian violet stains the kiddo purple, it is not a joke! She looks like she eats nothing but magic markers.
I feel a bit better now after writing it all out. It’s simple, yet complex. She has extreme gluten intolerance. She doesn’t do well with any grains. She thrives on grassfed meat and vegetables. Her stomach isn’t has healthy as is could be because of how gluten affected it in utero and for the first 5 months of her life. We need to get her some good buggies in her tummy, probiotics, fiber, fresh foods. Her teeth as weak but so are many celiacs. We are lucky to live in a place where we have the choice of fixing her teeth and picking from a wide variety of foods that mourish her body the best.
We are just choosing to do the endoscopy to make sure we haven’t missed anything and we are doing the teeth because that way we don’t have to fight over flossing and brushing as much and don’t have to feel bad when one day one of these teeth abcesses and causes her pain, and then we feel like we should have done something differently. So all those reasons make it okay to put her under, I think. If we don’t do it, she’ll be fine. If we do it, she’ll be fine, but we have less to worry about and may have some answers about why her stomach finds it harder to digest food, even on a gluten free diet.
Okay. I think I’ve convinced myself now.